Below are letters comments and advice from our readers. We wish to encourage an open community here where everyone can have an input. These letters will also be repeated on our forum pages HERE
Please send any letters for inclusion to mike07@risingfree.com

Donna

Hi,
I have a pituitary tumor and have had two distinctly different opinions on whether an operation is necessary. According to my opthamologist, my visual fields are being affected. My eyes hurt sometimes now since the tumor has gotten a bit larger.

I want to know is there a way to fight the changes that occur after the pituitary gland is removed? Do we have to gain weight, feel so horrible and have our lives change so drastically? Do we have to take hormones and steroids that I fear will make my life and self esteem so different? Can someone write back and tell me if there are people that have positive effects when the pituitary gland is removed is they have the ability, energy and desire to attempt to keep that part of their life alive, despite this surgery?

I do not mean to seem ignorant. I am just searching for a way to not loose so much of my life if I have this surgery. I do understand the necessity to take these hormones and steriods but do we have to settle for feeling so horrible about ourselves afterwards? I am so afraid right now.

Donna donna.trimarco@dix.army.mil

Jon

Hi,
I have just been diagnosed with Acromegaly and underwent surgery last week to remove the tumour, which was discrete. The surgeon thinks they got all of the tumour. Time will tell.

I am interested in learning more about the experiences of other people who have been diagnosed with Acromegaly and are post operative.

Jon Jon.Eddington@sympatico.ca

Coy

Hi,
I'm on year 3 of panhypopituitarism and I was a rare case for doctors. The MRI showed a mass, and doctors thought it was a tumor. But to their suprise it was not, It was an abscess that had the makings of a tumor. Neuro report stated that a creamy substance oozed from the pituitary gland. It damaged the pit gland and I'm on all of the hormone replacement therapy.

I'm 25 years and I have a very stressful job working in a 911 communication center for a busy city. There are times it gets stressful, but I have to keep going.

Coy jbbridge55@msn.com

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